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Will & I : A Memoir
by Clay Byars


Overview -

Clay Byars was recovering at home from a near-fatal car crash when he suffered a massive stroke. He was just eighteen years old. He awoke, back in the hospital, and was told he would be paralyzed from the eyes down for the rest of his life.

Determined to defy the odds, Clay quickly and miraculously began to recover his mobility but discovered just how different his life would be a disparity embodied by his identical twin brother, Will.  Read more...


 
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More About Will & I by Clay Byars
 
 
 
Overview

Clay Byars was recovering at home from a near-fatal car crash when he suffered a massive stroke. He was just eighteen years old. He awoke, back in the hospital, and was told he would be paralyzed from the eyes down for the rest of his life.

Determined to defy the odds, Clay quickly and miraculously began to recover his mobility but discovered just how different his life would be a disparity embodied by his identical twin brother, Will. As Will went on to graduate from college, marry, and start a family, Clay carved out a unique existence, doing the seemingly impossible by living on his own on a remote farm in Alabama.

With haunting clarity and heartrending honesty, "Will & I" tells the unlikely story of Clay s life and his coping mechanisms, including weekly singing lessons that not only teach him to use his voice but remind him of his will to exist. In this singular and striking meditation on vulnerability and vitality, we re invited to see how Clay sees the world and how the world sees him as he bravely challenges himself and his abilities at every turn."

 
Details
  • ISBN-13: 9780374290283
  • ISBN-10: 0374290288
  • Publisher: Fsg Originals
  • Publish Date: June 2016
  • Page Count: 208
  • Dimensions: 7.4 x 5 x 0.5 inches
  • Shipping Weight: 0.3 pounds


Related Categories

Books > Biography & Autobiography > Personal Memoirs
Books > Biography & Autobiography > People with Disabilities

 
Publishers Weekly Reviews

Publishers Weekly® Reviews

  • Reviewed in: Publishers Weekly, page .
  • Review Date: 2016-05-16
  • Reviewer: Staff

In this memoir of suffering and recovery, Narrative editor Byars recounts his struggle to master a body shattered by tragedy. As a college sophomore, Byars was severely injured in a car accident. Botched surgery led to a massive brain-stem stroke, leaving Byars quadriplegic. Resisting the diagnosis, he gradually recovered the use of his limbs, though he continued to suffer physical deficits. For Byars, reconstructing himself as a social being was equally difficult, especially in comparison to his uninjured identical twin, Will. Writing became central to Byars's creation of a new identity, even as Will married and started a family. Byars describes his losses and slow progress in succinct, unsentimental prose. The most striking feature of the memoir is his emotional distance. Even Will, his genetic double, plays only an occasional role in Byars's narrative. In an intriguing stylistic choice, Byars blends past-tense narration of his accident and aftermath with present-tense descriptions of life on an isolated rural property. Byars's minimalist approach and his remove make for a fascinating, if chilling, meditation on the aftermath of trauma. The themes that appear in the final chapter would have benefited from earlier development, but they provide a remarkable conclusion to his long calvary. (June)

 
BookPage Reviews

For a paralyzed twin, a new path

"Oh hi,” Clay Byars says, answering the phone at his home in what he calls “horse and cow country” in Shelby, Alabama, about an hour south of Birmingham. “How are you?”

The fact that 43-year-old Byars is giving a phone interview is nothing short of a miracle, given that he nearly died not once, but twice—in a pair of events that he chronicles in the intensely powerful memoir Will & I. Not much has been easy since, he writes: “Actions as simple as brushing my teeth, shaving and showering all begin with the question ‘How am I going to do this?’ ” 

Writing remained one of the few things he could still accomplish without struggle and quickly became “a healing obsession.” Telling his story, however, proved to be anything but easy. 

“I figure that with all the different drafts,” Byars says, “I’ve probably been working on it for about 15 years. So it’s been a while.”

In 1992, during his sophomore year at the University of the South in Sewanee, Tennessee, Byars was riding in a car with friends when an oncoming car veered into their lane. Byars likely would have died at the scene had not a passing motorist removed a piece of broken jaw from his airway. Additional injuries included nerve damage to his right shoulder that left him unable to bend his elbow.

Meanwhile, his identical twin brother, Will, was hours away, back at home in Birmingham, studying for a test and unaware of the accident. Just before midnight, though, Will was suddenly awakened by a throbbing pain in his jaw. 

“We’ve had incidents like that throughout our lives,” Byars says. “People used to ask us what it’s like to be a twin. My response was always, what’s it like to not be a twin? So I didn’t think much of Will’s jaw pain at the time of my wreck.”

Tragically, things went from bad to worse. About nine months later, a New Orleans neurosurgeon nicked Byars’ vertebral artery while attempting to repair the nerve damage, causing him to have a massive stroke. For several weeks, he experienced Locked-In Syndrome, leaving his brain unable to communicate with his body. 

“It was a weird feeling,” Byars remembers, “and it’s sometimes hard to think about that now. The best way to describe it is having one dream inside of another and waking up, but not being fully awake yet from the first dream.”

Byars says the neurosurgeon continued to practice, eventually retiring. When Byars’ parents tried to sue, the surgeon was so respected that other doctors weren’t willing to testify against him. He never apologized, but Byar says, “I kind of understand why he didn’t. He didn’t want to make himself liable.”

The initial prognosis was dire, with the best-case scenario that he would remain paralyzed from his eyes down. Will recognized that his brother was “conscious and trapped,” which was unbearable to witness, so he said nothing and left. To others, Will’s reactions might have seemed abrupt, but Byars understood, writing, “Every stage of life we’d gone through not just together but as a unit, as a unity.”

Ever so slowly, Byars began to regain movement, first in his right leg and right thumb. While others rejoiced, hoping that Byars would recover fully, Will held no such illusions, and once again, quickly left his brother’s hospital room. “He didn’t know what to say, and I couldn’t speak,” Byars writes.

After months of physical and occupational therapy and workouts at a nearby gym and on his home elliptical, Byars never did fully recover, but today, he walks, drives and lives independently. His vocal cords were left extremely weak, and he’s been taking singing lessons for a number of years, trying to strengthen his “head-injury voice.”

As he explains in his memoir: “I like being able to do things I’m not supposed to do. . . . According to my MRI, I should have been more or less a vegetable.”

The “Will” in Will & I refers not only to his twin brother, but to Byars’ own incredible will, something that he understood anew while still in the hospital, in what he describes as a “liberating flash of vision.” Both of these “wills,” it turns out, have remained essential to his survival.

Undeterred by his vocal problems, Byars is an engaging communicator. In addition to our phone conversation, he answers follow-up questions by email and shares a letter he wrote to Will about his hospital vision, which he later understood to have been the Zen experience of satori, or enlightened consciousness. “It wasn’t a near-death experience,” he wrote. “On the contrary; it was the greatest affirmation of life I’ve ever felt.” 

Byars eventually finished college, and he now writes short stories and serves as an assistant editor for Narrative magazine. Will ended up marrying Byars’ high school girlfriend, and Byars eats dinner with the couple and their three daughters each week. “In many ways, our relationship hasn’t changed since the wreck,” Byars explains in his book. “We are no longer physically equal, but we are more open with each other than we used to be.”

When asked if he ever feels jealous of Will, Byars responds, “Sometimes I’m envious of the ease with which he can do things that take me hours, if I can do them at all, but on the whole, no.”

Byars’ first attempt to write his story took the form of fiction, but he deemed the storytelling ineffective and too linear. He kept at it, though, eventually attending the Sewanee School of Letters to work with writer John Jeremiah Sullivan, who suggested that he weave his voice lessons into the tale and who also helped him pare down his manuscript. “We went over it line by line, working for about three months,” Byars remembers.

The result is compact, substantial and thoroughly compelling—reminiscent of neurosurgeon Paul Kalanithi’s posthumous bestseller, When Breath Becomes Air. While Kalanithi addressed the prospect of his impending death from cancer, Byars tackles the question of facing an immensely compromised life. 

When I suggest that Byars read Kalanithi’s book, he does, later emailing to tell me how much he admires it, and adding, “I wish he’d been my neurosurgeon.”

 

This article was originally published in the July 2016 issue of BookPage. Download the entire issue for the Kindle or Nook.

 
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